Tuesday, February 8, 2011

My Worst Nightmare

Those who know me know me well. For those who don't I will share a few key facts that are important to the story: I have a 12 year old daughter (DJ), who is pretty much MY LIFE! She has had type 1 diabetes for about 5.5 years. We sleep together every night because my fear is that something will happen to her in the middle of the night and because her bedroom is upstairs and mine is down I wouldn't know. I've gotten a few side eyes, like "this chick is paranoid", but the fear of what might happen wins over the obvious-the child (and her mother) needs to learn to sleep alone.

I finally bought DJ a bed and Saturday night as we were settling in I gave her the "this is the last night I'm sleeping with you, we're both big girls and need to act like it" speech. At about 5:00 a.m. Sunday morning DJ was moving around in her sleep. I thought she was having a nightmare so I tried to poke her awake. That didn't work so I shook her shoulder a little. I was concerned that maybe she was in a deep sleep and having an unusually bad dream, it happens sometimes, so turned on the light and went over to wake her-so she'd see me when she woke and not be too scared. With the light on and standing over DJ I realized with the quickness that something was WRONG! Not only was she not waking up but her arms were twisted behind her body in an odd way and her legs were moving continuously, seemingly on their own. Her eyes were closed and her face showed no emotion.

I shook DJ a couple more times and she wouldn't open her eyes. Holy Shit. My baby is unconscious and I can't wake her. I tested her blood sugar and she was 57. Low, but she's been much, much lower and not even known it. Normally for low blood sugar DJ would drink juice. That wasn't happening. There is a shot called Glucagon that is to be given in this situation. I had the shot out and ready to go but DJ is a big girl and quite strong. It would have taken two of me, one to hold her down and one to administer the shot, for this to happen. Especially while I'm crying and trying to answer questions.

By the time the paramedics get there DJ's eyes are open but she's unable to talk and she's looking around wild eyed and helpless. Her arms and legs are still moving but now she's on her back. There are five men in her room and her mommy in her face trying to comfort her. I'm trying to hold one of DJ's arms down while paramedic #1 tries to get an IV in her arm and paramedic #2 is taking her vitals. #2 gets it in the face a couple of times by DJ's arms that are still moving on their own. I'm straddling her body trying to comfort her and #1 is trying his darndest to hold her arm still so he can get that IV in there. I think he only poked her twice, not bad. DJ wasn't out of control, her arms and legs were moving in almost slow motion but it was constant. And bizarre.

After a very large dose of sugar being shot into her veins, DJ regained control of her body, the ability to talk and began to giggle uncontrollably. She can walk downstairs with a little help and laughing all the way climbed onto the gurney for our little trip to the hospital. On the way to the hospital DJ's number was 244-way high but easily fixed. The sugar high wore off about the time we reached the ER and about an hour later she had a migraine and did a little vomiting.. DJ's number dropped to 164 with no insulin. 164 is a good number but getting there with no insulin is not good. Eventually her number started rising again, we put on the pump, fed her some breakfast and left the hospital about 11:30.

I called the BFF when we got to the hospital (about 6 a.m.) and she met us promptly, with Starbucks in hand, and sat with us the whole morning. After the ordeal she gave us a ride home and joined us for a fabulous lunch of Little Ceasars pizza. I cannot even tell you how much I appreciate her being there and helping me trying to help DJ.

The rest of the day was spent with DJ eating, sleeping or crying because her head hurt so bad. She finally fell asleep around 8 p.m. for the night. I was scared to fall asleep but finally passed out around midnight, setting my alarm to test her blood sugar every two hours. She had some headaches going on yesterday, but so far so good today.

The point of the story. DJ may never sleep alone.

11 comments:

  1. Wow Rose. I was very saddened to read that. I have never met DJ, but the way that you talk about her makes me feel like I have known her for a very long time. It is a very sad thing when everything that you do as a parent seems uncontrollably useless. But you are an awesome mom and you stuck with it. Very proud of you and DJ. And the sleeping alone thing, that is not a big deal. You are always close to the one that you love. And if sleeping with her is your way to be comfortable and not to worry as much so be it. That is a mothers love. And let me tell you you have more mothers love in you then a lot of mothers out there.

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  2. Rose...I am so sorry to hear of the struggles you and DJ have to face daily with this health issue. I work at 911 and am truly amazed every time I have to take a call from a parent dealing with a child with health issues such as these, especially when they have an episode that is out of "the norm" for their child, making it extra scarey. I applaud you and DJ for your bravery. :) As for the sleeping with the child thing...anyone that would judge you for that should just take a flying leap!!! My kids are 7 and 12. I have had to work graveyard or some similar night shift for the last 5 years so I am rarely here at night. What that equates to is them desperate for my attention on the nights I am here. There is nothing that sooths their soul more than cuddling up on each side of me and falling asleep. Ok so maybe it is more soothing to my soul since I feel like I miss so much time with them. Anyway, they are only kids once and I just do care AT ALL what anyone thinks about it. Love and prayers to you both. - Angie Crane Hendrix

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  3. Wow, so sorry to hear that DJ got ill. It seems to me that sleeping alone could be overrated. You are a good mom. I love you!

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  4. I love you, I love DJ and I love the idea of this blog! You were right where you needed to be that night! I am so HAPPY that DJ has a mom like YOU! I am ALWAYS just a phone call away ... day or night! XOXO

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  5. YOU SLEEP WITH HER AS LONG AS YOU WANT. DON'T EVER LET ANYONE QUESTION WHAT YOU DO AS A PARENT. WE KNOW BEST. WHEN WE STIFLE THAT INNER VOICE IT IS ALWAYS A MISTAKE. MY 15 YEAR OLD STILL SLEEPS WITH ME ALL THE TIME. BY THE WAY I THINK I SAW YOU IN MILWAUKIE LAST THURSDAY NIGHT AT A BASKETBALL GAME. I AM GLAD YOUR DAUGHTER IS DOING BETTER. CHARITY KEENEY

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  6. Charity, that would be me you saw! You should have said hello. And thank you for your kind words.

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  7. You are such a strong person Rose, I admire you for that. You definitely have tough times to deal with and more to come, However you are such a great mom. DJ is blessed to have you and vise verse. I love you both and please know that you are in my prayers. I pray also that someday we will find a cure for diabetes.

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  8. Thank you all for your support and kind words.

    Tracy, Amy and Heidi. I love you too! I'm blessed to have strong mothers in my life. We may not have the same struggles, but we all struggle with something. As long as I have my friends I am not alone in this-I have to remember this.

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  9. My mom used to let me sleep with her when I was sick. It was comforting. I am still close to my mom. I think that you are doing what needs to be done. I just wish there was some way to control the diabetes and not let it control you. I am sure that DJ appreciates all you do and you are showing her what unconditional love means.:)

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  10. Maryann-rest assured we are not controlled by diabetes. Diabetes would have us sitting idly by on the sidelines watching life go by, simply being spectators. DJ and I rarely say "we can't, because of diabetes". We are busy finding ways around, over and through the mountain. This was a simple set back, we move forward armed with new information to keep it from happening again.

    It will probably happen again someday and we will meet that challenge head on as well.

    Thank you for your support. It is much appreciated.

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  11. You are the BEST my friend!! It has always amazed me how much alike us and our lives are!! We WILL one day say " Yes! My daughter WAS a Type One diabetic"....Until that day comes you KNOW I'm here for you and I KNOW you are here for me!! We may be hundreds of miles apart but we are SIDE BY SIDE in the fight for our girls!! I Luv You my Friend!!!
    Hugs and Kisses from the East Coast
    Denise--Proud momma of a Type 1 diabetic!!

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